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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)

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@glendy

I received my diagnosis an hour ago. I am so glad there is a support group for this. I will try and figure out what some of the abbreviated language you are saying but I think, after I fully get into this situation, I will eventually know. I am 58 years old. My "grape" appeared 6 weeks ago now. I called to have an mammogram scheduled one week after I discovered it...hoping it would go away, which it didn't. They couldn't get me in for 2 1/2 weeks. I showed up and they asked me if I had any pain or discovered anything..I said yes and they told me that I needed to go to a different facility. That appointment took me out another week. Then another wait for the biopsy and results. The "grape" was not the actual spot for the invasive lobular carcinoma, it was beside it..possibly just inflammation from it. But thank goodness for it, I would have never detected it. I am kinda scared and kinda thinking..you got this. Right now, telling my parents and my son is going to be the worst.

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Replies to "I received my diagnosis an hour ago. I am so glad there is a support group..."

@glendy you DO got this! You’ll learn more about your diagnosis each day and the experts will lay out a plan for you. Educate yourself and ask many questions. Write them down and write down the responses. The more you know will help drive your care tailored to your preferences. It feels daunting at this point of your journey…believe me, I know. I had a different breast cancer, but the feelings are the same. I’m on the other side now and wonder how did I get through all of this. I relied on family and friends. I didn’t want to tell them at first, especially my children and family, but they were the best support. Like I said…you DO got this!

This sure is a sneaky cancer! I also found what I thought was a lump, only to find out that the cancer was elsewhere in my breast and larger than I thought. I was fortunate in that I didn't have to wait for a mammogram, biopsy or diagnosis. I walked into the oncologists office blind. I knew nothing about the different types of cancer, how they are graded, what tests are done, and what test measured my possible outcome. I quickly learned! My suggestions on this journey are to rest when you need it, rely on others, eat well, and exercise when you can. I finished my last treatment 2 months ago and am bouncing back to my previous energy levels. Still nap occasionally though. Good luck and many prayers are going your way.