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RSD/CRPS

Brain & Nervous System | Last Active: Apr 26, 2023 | Replies (118)

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@rwinney

Hello there @rivermaya34, how are you doing? Did you go through with the spinal cord stimulator implant? I've been thinking about you and wondering. Sending lots of positive vibes your way and look forward to hearing back.

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Replies to "Hello there @rivermaya34, how are you doing? Did you go through with the spinal cord stimulator..."

Hey there @rwinney !! Sorry I have been so distant for a little while now ... so much going on in life, as you know. I actually did something for me and took this semester off from school because I realized I had too much on my plate "physically" and needed to put my health as a priority. Besides, my academic focus was becoming scattered and my body was screaming "REST." I went through the SCS trial (Boston Scientific) towards the end of October, and the results were incredible! I had 85% relief all across the board for all of my symptoms - nausea, pain and allodynia. I felt like a whole new person and I actually cried. I couldn't believe it was actually possible to feel so good again! I had 4 days of amazing relief, with only one minor complication that was quickly remedied, but otherwise they deemed me a highly prime candidate for the permanent implant. I'm going into surgery for this on 12/21 (next Wednesday) and I'm counting down every second! The last few months all of my symptoms have escalated and I've been sick quite a lot, but my joy continues because there is so much hope ahead! 🙂 Thank you so much for thinking of me and for all of the positive thoughts sent my way - I've felt and absorbed each and every one of them! Thank you!! I hope you're doing good also???