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Prednisone and Pain

Polymyalgia Rheumatica (PMR) | Last Active: Feb 1, 2023 | Replies (111)
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@keelin

Two GPs (Ocala and Orlando) and two Rheumatologists (Ocala and Clermont), Pain Management (Anodyne) (Ocala) have ALL concluded that I have PMR. Nothing else. I have had bloodwork, XRAYS, and further testing for any other anomalies....nothing. Straight and simple PMR.
What you have to understand is that Prednisone is intolerable to some people, and does not manage the pain.
1. My blood pressure shot up to the sky- and was always low.
2. The pressure in my eyes shot up to over 30.
3. I was experiencing shaking so badly that I could not get a spoon to my mouth.
4. Foot Cramps
5. Inability to sleep at all.
6. NO RELIEF from PAIN.
7. Tremendous Anxiety
I will not be responding to any further 'concerns' from people on this site, who seem anxious to lay more diagnoses on me, and/or who choose to INSIST that Prednisone is a sovereign and irrefutable answer to PMR for everyone. Personally, I would not question someone else's diagnosis, as it's not my business to deny their experience- with PMR or anything else.

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Replies to "Two GPs (Ocala and Orlando) and two Rheumatologists (Ocala and Clermont), Pain Management (Anodyne) (Ocala) have..."
John, Volunteer Mentor | @johnbishop | Nov 19, 2022

Hi @keelin, You are not alone. I'm hoping you continue to post your experience. It helps when you share your story as I'm sure there are other members that may also be in your situation with PMR that are looking for answers and prednisone is not providing the relief from PMR symptoms. It's good to hear from everyone that is looking for answers and I'm hoping you find something that helps and are able to share what helps you.

You may have already seen this 2016 research article but thought I would share it so others understand prednisone does not work for everyone with a PMR diagnosis.

"Furthermore, as there are no guidelines for the management of GC-resistant PMR patients, alternative therapies may be considered. Immunosuppressive agents such as methotrexate (MTX) and biological agents such as anti-tumor necrosis factor-α (anti-TNFα) agents and anti-interleukin-6 (anti-IL-6) receptor antibody tocilizumab (TCZ) may be possible candidates as adjunctive therapies."
-- Glucocorticoid-resistant polymyalgia rheumatica: pretreatment characteristics and tocilizumab therapy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4844628/

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