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Investigations for pancreatic lesions, NETs? Confused and concerned

Neuroendocrine Tumors (NETs) | Last Active: Nov 21, 2022 | Replies (12)
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@cottagepeople

Thank you for asking. I did have the EUS without the biopsy. The Dr said he didn't do the biopsy because what he saw was scar tissue and the pan duct was slightly enlarged. He said it is good news but ordered blood work and another MRI in 3 months. I'm happy and confused. Why the lab and MRI so soon if nothing? Do you know?

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Replies to "Thank you for asking. I did have the EUS without the biopsy. The Dr said he..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 19, 2022

@cottagepeople

From my experience, your doctor is doing the typical follow up. At this point, it won't serve you well to be overly confused and/or worried. I'm always thankful for the follow ups and appreciate the doctor being thorough.

I had an EUS without biopsy when my pancreatic cysts were first discovered. At first, I had a yearly MRI. After a couple of years (of no changes) I began having the MRIs every other year. Now, it is every two years and I have blood work done in the in-between years when an MRI is not done.

After several follow-ups (and if no change in the size or number of pancreatic cysts are found) the follow-ups will probably be less frequent.

How are you feeling?

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Colleen Young, Connect Director | @colleenyoung | Nov 19, 2022

I agree with @hopeful33250. It sounds like your doctor is being thorough and wants to keep an eye on your pancreas just in case. I hope that can give you some comfort rather than worry.

I'm also tagging fellow pancreatic NETs members, like @kt348 @sturns @elm60, who can share their investigative procedures and how monitoring was done for them.

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