@njed I believe the sweating is the first thing, from what I remember, that bothered me when i about 26-27 years old and not long after I noticed that I was having a lot of pain, starting from my lower back and down my legs. I also have a lot of neck pain and migraines. I also have a balance problem as well? I’ve noticed recently that if I’m beginning to feel some intense pain the sweat often follows soon after.
For example, just yesterday I went to the grocery store to pick up ONLY a FEW things, and the pain in my legs started to get worse as I step in line to pay for my items and as I’m standing in line to pay at the register I feel a flush of sudden heat and then the sweat soon followed. First the top of my head begins to sweat and then my forehead, face, top of my chest & my entire neck will start to sweat as well. I sweat so bad that the sweat literally pours off of my head, forehead and neck. The sweat pours off my entire face and into my eyes, burning & stinging so much that I just can’t keep my eyes open. It’s horrible, I can’t tell you how many times I’ve been asked if I was ok and/or if I needed assistance.
It doesn’t matter where I am when it happens, at home or away, I’ve noticed that I tend to panic the moment I feel that I’m going to have a sweat attack. Because sometimes I really struggle to calm the sweating down. I have fans literally EVERYWHERE in my home. It’s quite embarrassing when you’re not wearing a winter coat while trying to fan yourself in the middle of a Chicagoland winter. Oh! I just learned that my sister, who is a year younger than me, has almost all the same symptoms as I and a house filled with fans. We haven’t mentioned the sweating to one another because my sister thought she was having normal hot flashes and I didn’t mention anything to her because I just don’t like to complain. We were both diagnosed with Fibromyalgia, Osteoarthritis, Rheumatoid Arthritis and Sjogrens as well. She was diagnosed with Lupus and I was diagnosed with Scleromxyedema. Anyway, I told my sister that this kind of sweating is not normal otherwise we would see a lot more women out there with soaking/dripping wet hair, face, and clothes. So I’m thinking the sweating, neuropathy and pain is genetic.

I don’t know if this is symptomatic? But I have been sooo tired and weak anymore. I could sleep for hours & hours, wake up and still feel as if I need more rest. I have barely any energy even after 19 hours of rest. My doctors don’t know what to do and several of them are recommending me to Mayo. I don’t know which Mayo to go to? Any thoughts and/or recommendations?