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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)
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@suzyis7

No symptoms.....incidental finding from complaints of right side pain. Yes, my PET scan is today and I am concerned that it will reveal other tumors in other places.
This forum/group is wonderful! It helps so much to hear others explain what they are experiencing with neuroendocrine tumors.
Thank you for mentoring!

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Replies to "No symptoms.....incidental finding from complaints of right side pain. Yes, my PET scan is today and..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 18, 2022

@suzyis7

Your experience of an "incidental finding" is so common among us NET patients. My diagnosis was the same. No symptoms, but a routine EGD for GERD/hiatal hernia revealed the first NET in the duodenal bulb. Since the first surgery, I've had two more surgeries. My surgeries were in 2003, 2005 and 2016.

I look forward to hearing from you again. I hope you will update me with any findings from your PET scan today. Will you let me know of any questions you have as you walk this NETs journey?

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