← Return to Welcome to the NETs Group! Come say hi.

Discussion

Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: 16 hours ago | Replies (411)
Comment receiving replies
@suzyis7

No symptoms.....incidental finding from complaints of right side pain. Yes, my PET scan is today and I am concerned that it will reveal other tumors in other places.
This forum/group is wonderful! It helps so much to hear others explain what they are experiencing with neuroendocrine tumors.
Thank you for mentoring!

Jump to this post

Replies to "No symptoms.....incidental finding from complaints of right side pain. Yes, my PET scan is today and..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 18, 2022

@suzyis7

Your experience of an "incidental finding" is so common among us NET patients. My diagnosis was the same. No symptoms, but a routine EGD for GERD/hiatal hernia revealed the first NET in the duodenal bulb. Since the first surgery, I've had two more surgeries. My surgeries were in 2003, 2005 and 2016.

I look forward to hearing from you again. I hope you will update me with any findings from your PET scan today. Will you let me know of any questions you have as you walk this NETs journey?

VIEW AND REPLY