Hello @suzyis7 and welcome to the NETs discussion group at Mayo Connect. As I've had three surgeries for NETs in the upper digestive tract, I really understand the shock that you are feeling. I never had any symptoms, so the surprise at having a rare form of cancer was hard to imagine. Typically, NETs are slow growing as you indicated.

I would encourage you to learn as much as you can about NETs. The Carcinoid Cancer Foundation (CCF) has some great patient information as well as videos from experts in the field. Here is their website, https://www.carcinoid.org/for-patients/. The more you understand about any disorder, the better prepared you will feel to deal with it.

Were you having symptoms that led to this diagnosis? Is your PET scan coming up soon?