@diwint are you considering Tymlos, Forteo or Evenity if your bones are "bad"? Those build bone. I am on Tymlos for two reasons: the dose is adjustable so I started low, and also I can follow it with Evenity but not the other way around, according to my doc. Side effects ease up after a few weeks, especially if you start low and ramp up.
@diwint are you considering Tymlos, Forteo or Evenity if your bones are "bad"? Those build bone. I am on Tymlos for two reasons: the dose is adjustable so I started low, and also I can follow it with Evenity but not the other way around, according to my doc. Side effects ease up after a few weeks, especially if you start low and ramp up.
I did the daily Forteo shots prior to starting back on Risedronate (just as an interim until I decided what to do next). All the choices pose such undesirable side effects. Evenity scares me because I do have some heart issues. I’ve been told that once you start Prolia you can’t stop so I didn’t want to go that route. I’m not familiar with the other one you mentioned & no doctor has recommended it. I’ve been told it would take a miracle to get my bones at a point where surgery for my advanced scoliosis would be possible, so I’m just trying to do what I can to not break anything.
I did the daily Forteo shots prior to starting back on Risedronate (just as an interim until I decided what to do next). All the choices pose such undesirable side effects. Evenity scares me because I do have some heart issues. I’ve been told that once you start Prolia you can’t stop so I didn’t want to go that route. I’m not familiar with the other one you mentioned & no doctor has recommended it. I’ve been told it would take a miracle to get my bones at a point where surgery for my advanced scoliosis would be possible, so I’m just trying to do what I can to not break anything.
I hear you. Trying to avoid breaking anything indeed.
Tymlos is similar to Forteo. I have read that there is no longer for Forteo. (Interstingly, Forteo affected my heart by speeding it up more than Tymlos does, and I occasionally have afib).
Can you do Reclast? Or continue on the risedronate?
People seem to tolerate Evenity really well. I understand the hesitation and cardiologists really don't know
I hear you. Trying to avoid breaking anything indeed.
Tymlos is similar to Forteo. I have read that there is no longer for Forteo. (Interstingly, Forteo affected my heart by speeding it up more than Tymlos does, and I occasionally have afib).
Can you do Reclast? Or continue on the risedronate?
People seem to tolerate Evenity really well. I understand the hesitation and cardiologists really don't know
AFib is not good! I hope that has improved for you.
I’m waiting to hear back from the insurance company but the Dr thought Reclast would get approved. I just cringed when I read some of the blogs with the side effects. And pumping something into my body that will work for a whole year is a bit unnerving, but I guess I don’t have a lot of choices. I started adding collagen to my coffee this morning!!! I don’t think it can hurt.
AFib is not good! I hope that has improved for you.
I’m waiting to hear back from the insurance company but the Dr thought Reclast would get approved. I just cringed when I read some of the blogs with the side effects. And pumping something into my body that will work for a whole year is a bit unnerving, but I guess I don’t have a lot of choices. I started adding collagen to my coffee this morning!!! I don’t think it can hurt.
@diwint My doc is going to do a partial dose of Reclast first to see how I react. A quarter dose I believe. With lots of hydration and a slow infusion rate. If I do okay I will have the rest of it, or I will have more frequent partial doses I think.
I have been reading most of the comments on treatments for osteoporosis. I have been having Prolia injections and at the point of transitioning. I haven’t read anything about wholistic natural diet based protocol going forward. Any comments?
I have been reading most of the comments on treatments for osteoporosis. I have been having Prolia injections and at the point of transitioning. I haven’t read anything about wholistic natural diet based protocol going forward. Any comments?
Sure, check out Keith McCormick's book "The Whole Body Approach to Osteoporosis" and other sources. However, I would not rely on natural methods, myself, when stopping Prolia. My doc would follow it with Reclast to lock gains in and avoid the sudden drop in density that may happen when Prolia is stopped.
We have often heard here and on other forums to premedicate (tylenol, maybe benadryl), hyrate before and after, and ask for a slow infusion.If you are sensitive to meds you can also try a partial dose (1/4-1/2) first to see how you react.
I have done the Reclast annual IV infusion once at the 'regular" dose. I took Tylenal pre infusion, lots of water and slow infusion(about 40 min). Now 3 months out I still have bone groin pain both sides that I never had before. The doctor thought it would go away after a month post infusion, it has not gone away. I take 2,000 to 3,000 mg of tylenal a day now in order to manage this. I have not ruled out joint arthrititis but this pain feels different then that to me.
Is this pain from Reclast helping me or not? I don't know .
I have 2 friends that take Reclast annual infusions without any problem.
Fosamax gave me esophageal issues.
So maybe I am one of those folks that have issues with meds.
Good Luck
@juliamorey I am not sure a partial dose is possible for everyone. My doc wants me to do a test dose because he is nervous due to some other health issues I have. He was so nervous during my cancer treatment that he didn't prescribe the Reclast needed to protect bones.
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@diwint are you considering Tymlos, Forteo or Evenity if your bones are "bad"? Those build bone. I am on Tymlos for two reasons: the dose is adjustable so I started low, and also I can follow it with Evenity but not the other way around, according to my doc. Side effects ease up after a few weeks, especially if you start low and ramp up.
I did the daily Forteo shots prior to starting back on Risedronate (just as an interim until I decided what to do next). All the choices pose such undesirable side effects. Evenity scares me because I do have some heart issues. I’ve been told that once you start Prolia you can’t stop so I didn’t want to go that route. I’m not familiar with the other one you mentioned & no doctor has recommended it. I’ve been told it would take a miracle to get my bones at a point where surgery for my advanced scoliosis would be possible, so I’m just trying to do what I can to not break anything.
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2 ReactionsI hear you. Trying to avoid breaking anything indeed.
Tymlos is similar to Forteo. I have read that there is no longer for Forteo. (Interstingly, Forteo affected my heart by speeding it up more than Tymlos does, and I occasionally have afib).
Can you do Reclast? Or continue on the risedronate?
People seem to tolerate Evenity really well. I understand the hesitation and cardiologists really don't know
AFib is not good! I hope that has improved for you.
I’m waiting to hear back from the insurance company but the Dr thought Reclast would get approved. I just cringed when I read some of the blogs with the side effects. And pumping something into my body that will work for a whole year is a bit unnerving, but I guess I don’t have a lot of choices. I started adding collagen to my coffee this morning!!! I don’t think it can hurt.
-
Like -
Helpful -
Hug
1 Reaction@diwint My doc is going to do a partial dose of Reclast first to see how I react. A quarter dose I believe. With lots of hydration and a slow infusion rate. If I do okay I will have the rest of it, or I will have more frequent partial doses I think.
-
Like -
Helpful -
Hug
1 ReactionI have been reading most of the comments on treatments for osteoporosis. I have been having Prolia injections and at the point of transitioning. I haven’t read anything about wholistic natural diet based protocol going forward. Any comments?
Sure, check out Keith McCormick's book "The Whole Body Approach to Osteoporosis" and other sources. However, I would not rely on natural methods, myself, when stopping Prolia. My doc would follow it with Reclast to lock gains in and avoid the sudden drop in density that may happen when Prolia is stopped.
good idea- I didn't think that it was possible to get a partial infusion.
I have done the Reclast annual IV infusion once at the 'regular" dose. I took Tylenal pre infusion, lots of water and slow infusion(about 40 min). Now 3 months out I still have bone groin pain both sides that I never had before. The doctor thought it would go away after a month post infusion, it has not gone away. I take 2,000 to 3,000 mg of tylenal a day now in order to manage this. I have not ruled out joint arthrititis but this pain feels different then that to me.
Is this pain from Reclast helping me or not? I don't know .
I have 2 friends that take Reclast annual infusions without any problem.
Fosamax gave me esophageal issues.
So maybe I am one of those folks that have issues with meds.
Good Luck
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Like -
Helpful -
Hug
2 Reactions@juliamorey I am not sure a partial dose is possible for everyone. My doc wants me to do a test dose because he is nervous due to some other health issues I have. He was so nervous during my cancer treatment that he didn't prescribe the Reclast needed to protect bones.