Yes, EDS is a joint disorder and commonly is a comorbidity with MCAS, as it HATs and POTs.

Dr Afrin, who was the lead on this guide, wanted to provide the guide for free and did so on the EDS website...through the medical journals, you need a paid subscription. He addresses it to Gastroenterologists but really any Doctor who is curious can benefit from reading.

Mayo and so many other medical institutions and medical practices have decided to not seek MCAS patients or allow them to be referred in. We just take up too much time and the Insurance companies will not compensate them for their time. We are just too complex. And testing is just too difficult. I have taken me 4 years to get a positive hit on a lab test...I also have elevated Mast Cells in my GI tract...Even with the elevated Mast Cells, the Lab refused to run further test that would give more clues to what type of Mast Cells and their features. I'm sure it is an insurance thing! So many practitioners are hung up on Tryptase.

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