@comptomama please consider Ayurveda once. I myself am a patient of Autoimmunity and mine is Sjodreng syndrome (I dont knw the spelling). Since one year I am suffering from headaches, pain, numbness and what not. I am going for Panchkarma therapy of Ayurveda. I don’t know whether u have reach to Ayurvedic treatment but it has helped me a lot.