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Pancreatic Cancer | Last Active: Sep 5, 2023 | Replies (58)
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I need to call PanCan. I am some what involved. I attend survivor meetings and I did Purple Stride last year. I'm planning on doing it again this year.
I think my case is a little unique. I had cancer on the tail of my pancreas. Stage 2b After 6 months of chemo I had a clean PET. But over time my CA 19-9 started to creep up. I had another PET and showed a recurrence at the site where I had the surgery. More chemo almost a year and some radiation. Clean PET once more. Two months later back again in the same exact spot. I had another round of radiation and just started chemo Nov 7. No signs of it spreading anyplace else. So trying to find clinical trials has been extremally difficult.
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Besides calling PanCan, look up the phone numbers on the search sites EmergingMed.com, CancerCommons.org and myTomorrows. Let all three do searches simultaneously as there is no charge for them. This may improve the odds in someone finding that unique trial.
Reoccurrence in the remaining pancreas, especially in the surgical bed is not uncommon. Ablation using techniques like NanoKnife/IRE is being used as a treatment. Dr. John Chabot who is the Chief of Surgery of the Columbia Presbyterian Pancreas a center in NYC has expertise in this area and it may be worth contacting for a consultation.
https://columbiasurgery.org/john-chabot-md-facs