Medtronic Interstim SNS devices implanted 2008 - 2015 for faecal incontinence. I had lead failure, lead migration, intermittent shocks and right sided gluteal spasm. After 2 failed lead changes and a complete device change, I had the device completely removed in 2015. These stimulators caused me a lot of problems.
This year I've started to get shock like pain that radiates from the sacrum into my right buttock, coincidentally where I've old battery incision scars. This pain causes my glute to spasm and if my glute is relaxed, I've centralised lower back ache similar to when the devices were in. I've tried physio, fascia release. I've had an MRI that shows some nerve scarring around S3 which is where the 1st device leads connected into. However, I have no idea how to remedy this issue which potentially I'm stuck with. Driving and sleeping is affected too. I've tried medications like Amitriptyline but they leave me feeling too spaced out.
Has anyone else experienced issues after the devices have been removed?
I'm after some advice as to how I move forward. I know these devices have caused other people issues and I cannot find any information about problems after the devices are out.

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