Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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What have you trying to help the best thing so far? I’ve done is use the low fermentation diet.
Hi kiszo,
Sorry you also have this problem😢 I highly recommend you have a Bowel Transit Study done. It's an easy procedure, inexpensive and you will learn the shape of your colon - great to know where to do colon massage and the x-rays will show up any obstructions.
Molaxole is the most gentle laxative I've had in 35 years of this constipation problem. Apparently it has electrolytes in it which has to be good for you.
Wishing you all the best💞
Thank you! I will definitely check into having a Bowel Transit Study!
Individual, of course, but lots of fiber is not always best. I would increase gradually. Fiber can get “stuck” in the twists and turns as it is slow or doesn’t fully digest when reaching the colon. Research soluble vs insoluble fiber as that is a big difference. Again, very individual and you do what is best and works for “you”.
There's a product i use called Atrantil from time to time. Helps with bloating, abdominal discomfort, & change in bowel habits
I'm familiar with Cleveland Clinic MyChart. Not for my Gastro doc, he's in Pittsburgh. But I do see a Hematologist and a Urology surgeon in Cleveland and I have no problems communicating with either one. And I've never had a problem calling the office and talking with a nurse.
They have a pretty good system.......or I've just been lucky !
I think it’s just the individual dr. My former gi was at cc and he wouldn’t use My Chart. Said he was too busy to answer all those messages. Everything went through nurses. Same problem there. My messages were never accurately conveyed to him so directions back weren’t appropriate. Had to wait weeks for actual apt.
I had the exact same diagnosis after my last colonoscopy two years ago. Never even spoke to the doctor after the procedure.I do have issues with occasional cramping. I have found that Metamucil and a cup of coffee in the morning works for me, but I never had a issue with constipation yet. In fact the opposite occasionally, not diarrhea but three to four bowel movements a day.
Over the past year or so I've had issues with being gassy, bloated and often constipation. I had attributed the gas and bloating to menopause. There are times when I go once a day and others we I will go up to 4 days before finally having a bowel movement. I had already started drinking a tea called smooth move that has a gentle laxative effect that seems to keep me a bit more regular.
Hi sally,
Your response was helpful. I'm a 68 y/o male and had both knees replaced this year. that went great but now I'm constipated, don't know why. My GI doc had me on Linzess which did nothing. Motegrity is next. I hope it works.
He told me to take Dulcolax after 4/5 day as well. How long can Dulcolax be taken? If it's ok to do it every 4/5 days that's ok I guess as nothing else works.
Thanks to anyone who can answer this question. Much appreciated!
Joe