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Pituitary and pNET: Can't do the things I love anymore

Brain Tumor | Last Active: Oct 30, 2022 | Replies (17)

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@sturns

Has anyone experienced pain in their hip or lower back from pNET?
Anthony

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Replies to "Has anyone experienced pain in their hip or lower back from pNET? Anthony"

Was diagnosed in March of this year. Origin in mesentary lining.Metastasized to liver, and elsewhere. I have had right hip and low back pain for years but don’t know if it’s related . Based on scans it doesn’t seem to show a relationship.

@sturns, I'm tagging a few other pancreatic NET members like @ronregency @klpetts @titansmistress @kate12345 @elm60 to help discuss your question about hip and lower back pain.

Sturns, Does your doctor think it may be related? Have you consulted a physiotherapist?

@pjsheridan2022, have you found the cause of your hip and lower back pain? What helped?

Hi @sturns
I have had chronic back pain and hip pain for the last few years now as well. Mine has been diagnosed as a result of bone fractures and sciatica. (Steroid induced mostly caused by osteoporosis)
I broke my pubis ramus(small bone in the bottom of the hip) in 2018 but that actually doesn’t bother me now. On my CT and MRI’s these fracture show up under the heading sclerotic foci meaning they are regions that are either healing, inflamed or just dense. Keep telling the doc what you are experiencing and pain management is an option as well. I hope you get this figured out! 🙏✝️💜