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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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I wish they would use the portal. My neurologist/headache specialist at Cleveland Clinic uses My Chart. My messages do initially go through her clinical team but then are passed through to her. “She” answers them herself. And if you reply with another question, it goes directly to her. I love her and that system works great! I wish I could find a gi that would do the same. It would change my life.
I am curious to learn if anyone has lower abdominal pain, right , ascending colon area, and left sided pain, descending colon area when FINALLY having a BM following days of constipation? I do. I get the same pain when using an enema every other day. I am trying to understand the reason for this pain. I do have a tortuous colon could with severe constipation.
Thank you for your help.
KJN
@kjn72 - I can’t find any information about use of gastric pacemaker at Mayo for motility- except for gastroparesis.
Thank you so very much for investigating! I discovered the same looking at other websites
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1 ReactionHave y’all been tested for SIBO
Small intestinal bacteria overgrowth?
@carndt - How familiar the inappropriate or 1/2 answer is to my emailed questions to my physician! I try to constrain myself to one simple question per email and space them out. Or I just repeat the email . And repeat. I shut my windows when I scream with frustration so I don't annoy my neighbors. It helps.
Gastroenterologist Dr. Robynne Chutkan has occasional live Zoom presentations I get some helpful ideas from. Below is the most recent interview of her I found on the web. It focuses on the sale of her most recent book but she covers constipation and bloating in some of her older books.
I wish my new gi would use his portal. He wants me to just call his nurse. He does have a site to message, I may just try that the next time anyway. Maybe if she “reads” it she’ll get it right!
I hear you about the screaming! My poor husband is bearing the brunt of my frustration. Unfortunately, between the pain and dealing with health professionals, my patience is down to practically nothing.
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1 ReactionI just had my colonoscopy yesterday and was told the procedure was difficult due to significantly tortuous colon. That's it, they didn't say anything else about it, offer suggestions on how to deal with it, nothing. I did also have 2 polyps removed and they noted multiple diverticula throughout my colon. They did recommend my next scope happen in 3 years or sooner depending on the pathology report.
This was not the case with my last colonoscopy 5 years ago so the tortuous colon has developed over that time. In the last year or two I have had issues with constipation, bloating, gas, discomfort and weight gain. I am very concerned about the possibility of obstruction and committed to finding the best ways deal with this condition and reduce symptoms.
My thanks to all those sharing tips for what works best for you. I already drink lots of tea but plan to switch to plain water, add more fruits and vegetables, and possibly Benefiber to see if that helps.
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1 ReactionYes. I have SIBO-C. Hard to treat and hard to cure.
Yes me too 😞