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@chistiania

I have been struggling with this disease for so long. (Just trying to find some info on these pages has made me feel exhausted.) I have tried to find support groups in the city where I live but found none. I would appreciate it so much if someone with Chronic Fatigue Syndrome would write and tell me how they cope with it. I am sick for about 6-7-8 months every single year. I am doing better for a couple of months and then I get really sick again (the worst is the total lack of energy and the terrible feeling of being unable to do things that were so normal for me before. And I am talking of very basic things.) When I get so sick I also get terrible depression. Right now I don't know which of the two is worst. I only know that I am not well at all and that I feel miserable. It is so sad when I hear my doctor say with a kind of arrogant smile: "You know there are many doctors who do not believe in CFS ...". I know she is one of them. I feel it is offensive. I now go to her only when I need to check my thyroid (Hashimoto) which seems to go up and down (despite the fact that I take Levothyroxine), or if something else is wrong, otherwise I try avoiding seeing her. I have not found a doctor who is knowledgeable about CFS.

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Replies to "I have been struggling with this disease for so long. (Just trying to find some info..."

Hello everyone. I am not clever with computers at all. I don't know how to edit my comment. I found no place where it says "edit" but what I would have wanted to add is that I am new. I only joined today and this was my very first comment.