Connect
← Return to Routine CT Scan 12 years after RCC-Tumor Lower Left Lung - Nvr Smoked
Discussion
Routine CT Scan 12 years after RCC-Tumor Lower Left Lung - Nvr Smoked
Lung Cancer | Last Active: Nov 20, 2023 | Replies (34)Comment receiving replies
Unfortunately, the oncologist did not go into any specific detail about the genetic testing. He just said that there was no treatment for the mutations. I personally did not plan on going forward with any treatments. When the tumor was removed, the margins were clear and so were the lymphnodes. I have a follow up CT scan in Jan. I wonder who I can talk to about the genetic results?? I would love some direction if anyone has ideas!
Replies to "Unfortunately, the oncologist did not go into any specific detail about the genetic testing. He just..."
Connect
@mistyl- Good morning. It's nice to meet you. I have 25 years behind me of lung cancer and there are many treatments for mutations and it is imperative that you get tested. I suggest that you get a second opinion and be ready to change doctors. You are not getting accurate medical advice or information unless your doctor is not telling you everything.
This sounds very fishy to me. Has your doctor told you what kind of cancer and stage it was? On a positive note, it's excellent news that your nodes and margins are clear.
I would like you to know that it is very normal to be petrified to die. Outside of feeling lousy when you heal from surgery I'm sure that you are anxious to get on with living. One thing that helped me was, to be honest with my husband and let him be honest with me. He needed to tell me things, through tears and sobs. I think that being this open keeps things honest and open.
I hope that you can get to the bottom of genetic testing. If I were you I'd go back to this doctor and ask him/her to set it up. If you don't get a satisfactory answer from him then go to the top of his practice or the hospital. Does this make sense?