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@lidiana

I believe in my case yes 😓it’s progressing really fast. I was first having dumping syndrome symptoms (fast bowler movements), then very bad constipation (tried to manage: water intake, massages, suppositories, stool softeners but ultimately the hospital gave me Mirelax and laxatives, while giving me dicyclomine-in my case I don’t really know if it’s good idea- finally I have reduced the intake amount and increased the frequency over the day -when eating the small intake is 40% soluble solids and 60% liquid this has helped me a little) So far I have been diagnosed with HSD related to h/EDS on the spectrum and POTS subtype of Dysautonomia. I’m not sure what’s the root of everything tho. Some hypothesis from some doctors locally are:
✅that’s not gastroparesis
✅is endometriosis
✅POTS Dysautonomia
✅deconditioning
✅IBS

I’m concerned it’s that could be the NET cancer 2019 that started on the rectum is back after 2 years from the removal, other malignancy, MCAS or something autoimmune. I’m genetically in higher risk than average to melanoma, breast cancer, colon cancer afib and coronary heart deseases and have MTHFR. But we still working on figuring it out. My CT of the abdomen according to the vascular expert said I have diffused small bowel dilated, pathology said it’s just edema lymphocytic aggregates and I’m bleeding rectal a lil they said I have hemorrhoids. Back on February 2022 I got a hemorrhagic gastritis I think that was my first sign that something was not right but I was dealing with eating pain palpitations and extreme bloating. Still locally they gave me one egg after fasting from previous day 5pm (I was admitted that was the time of dinner) until 9am next day I think. I’m concerned because on March 2022 PET scan said “physiological activity” on my small and large bowels plus a suspected fibroid.

Hope everyone is doing better or getting the care needed. 🙏🏻Blessings of healing ❤️‍🩹

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Replies to "I believe in my case yes 😓it’s progressing really fast. I was first having dumping syndrome..."

@grace3 thanks for the hugs.
May I ask @grace3 what has been your experience with this condition?

Lidiana:
i just now see your post. you have a lot going on it seems like. There is only one definitive test for gastroparesis - the gastric emptying test - did you have that done yet - if not you should ask your GI guy to schedule it. i have a really good protein shake i drink - blend it with banana and pineapple or various other fruits - its called maxpro and has 30 grams of protein and lower sugar than most. it is really quite good. You can get it online. it is quite expensive but one bag lasts a long time and since you are not spending money on "real food" it is well worth it! i use about 1/4 cup orange/pineapple juice for liquid and the fruit is frozen - so it comes out very tropical tasting. get the vanilla - that way you can add whatever flavor you like - berries, pineapple, banana etc. sometimes i use chocolate milk for liquid - for a chocolate shake. i mostly have the shake daily, blended vegetable soup - cooked and blended fruit (apples or pears) and when i am doing "well" i can manage toast and a few other plain things..