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What testing should I look forward to be properly tested for MCAS
Autoimmune Diseases | Last Active: Sep 3, 2023 | Replies (45)Comment receiving replies
Thank you so much for sharing! I hope you get your thorough investigation soon. I think this is the blood test they did on me. Interesting 90% is a lot. Is Cromolyn and Ketotifen similar? are this kinda like Benadryl?. I have so much inflammation on my nasal cavity my locals say it’s just allergies and gave me fluticasone. So maybe it would be a good idea for the biopsy in my case. I can’t enjoy BBQ anymore 😓 without itching sore and trembling throat like bolus.
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Cromolyn comes in liquid vials that you take with meals and helps gut symptoms from MCAS--but I got nauseous. Ketotifen is an H1 antihistamine and you have to use a compounding pharmacy which puts powdered drug in capsules--neither med is cheap!
I think NasalCort contains cromolyn and Alaway eyedrops contains Ketotifen. Don't know if this form of the drug helps.