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What testing should I look forward to be properly tested for MCAS

Autoimmune Diseases | Last Active: Sep 3, 2023 | Replies (45)
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@lidiana

Thanks for sharing. I have tried to get a biopsy but with no success. I’m going to test for allergies on skin and blood. But is this how or do we need a biopsy to confirm definitively? I just don’t want to have a massive reaction when the biopsy could have avoided something going very wrong. I guess they can always use the 🖊️ pen or send me to the hospital 🏥 😅

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Replies to "Thanks for sharing. I have tried to get a biopsy but with no success. I’m going..."
frenchie333 | @frenchie333 | Nov 22, 2022

Lidiana, I believe a biopsy would be very helpful. Your lack of success angers me. The next time you suffer from a rash or hive, all they have to do is take a skin sample. That rash on my thigh? One of the two doctors at Vandy took a gentle scraping and sent the cells to the lab. That was it. DIAGNOSED! And that official diagnosis could open the door to meaningful care.

I've had the back scratch test. Results? Allergic to dust and cat dander. Neither of which would explain the severity of my cutaneious symptoms, fevers and swollen lymph nodes nor the dramatic, life-threatening GI symptoms!

Please keep us posted. I pray you find a medical practitioner who is receptive to your very basic need/request.

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