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CRPS - anyone suffering with complex regional pain syndrome

Chronic Pain | Last Active: Jun 22 1:48pm | Replies (362)
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@gmacalypso

I am 53 and I had a stroke in the right thalamus back in July. I have been going to PT and OT 3 times per week since August. I have much of my function back, but I suffer from central nerve pain or Dejerine Roussy syndrome. I have a constant tightness in my ribs, my ankle, my upper arm, and my hip and upper leg all on my left side. It feels like I have a rock under my left foot, and my left armpit feels like I have a stick shoved in it. Aquatic therapy gives me some relief, but the pain quickly returns afterwards, and after any exercise at all, it gets even tighter and more painful. I am currently taking Gabapentin 600mg 3x per day, but it is providing very little relief. I've been trying to keep a positive attitude about this, but it is starting to wear me down. Does anybody know of an effective treatment for this syndrome?

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Replies to "I am 53 and I had a stroke in the right thalamus back in July. I..."
John, Volunteer Mentor | @johnbishop | Nov 19, 2022

Hello @gmacalypso, I know it must be difficult struggling to find some relief from your nerve pain. I did find some information that might be helpful while we wait for members with experience to share what helps them.

-- Therapeutic Approaches for Peripheral and Central Neuropathic Pain: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6906810/
-- Central Pain Syndrome (CPS) - Healthline:
https://www.healthline.com/health/pain-relief-central-pain-syndrome
-- Treatment of Déjerine–Roussy syndrome pain with scrambler therapy:
https://www.futuremedicine.com/doi/10.2217/pmt-2019-0065

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Amanda Roe | @amandajro | Nov 21, 2022

Hello @gmacalypso. I was able to locate another discussion on the topic of CRPS, or complex regional pain syndrome so you will notice that I have moved your post here:
- CRPS - anyone suffering with complex regional pain syndrome: https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/

Members such as @jeanniem and @chuck406 have been recently active in the discussion along with @rwinney and @sueinmn. I am hoping one of them may be able to join you for support.

I have a family member with significant nerve pain issues and recently just added in Tramadol and has been experiencing a slight decrease in pain allowing for more sleep. Have you ever been offered that as an option? Not sure if it would be appropriate but may be worth an ask?

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