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Prognosis for Metastasized NET

Neuroendocrine Tumors (NETs) | Last Active: Mar 20 11:16am | Replies (63)

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@patrick031621

Thank you for your reply and comment. If I might I would like to share a few more thoughts and facts. I am convinced that sugar restriction is good ( as you notice I also restrict fats) but I am convinced even more so that calorie restriction is the most helpful. It is hard to get in that habit. I weighed 206 a number of years ago and brought my weight down through exercise and this diet. I will admit that I am basically skin and bones and muscle but it hasn't affected my activity levels. I walk two or more miles a day usually accompanied by one of my dogs on a leash. As I lost weight I found my need for food diminished to the point where I never felt hungry but still retain an appetite. I surmise that we have an ideal base weight that is an individual thing which we can reach. I stopped losing weight some months ago and that has stabilized. Because of our food availability, we may think we need more than we do. My testing numbers when I started this journey were terrible but now they are very good, much better than I ever expected. I am now 76 years old and surprised I have gotten there. ( by the way, not carrying extra weight is great for one's knees). I wish your husband all the best on this as at times it can be very discouraging. And as I have mentioned each of us is an individual case but this has worked for me and I thought I would share this "case."

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Replies to "Thank you for your reply and comment. If I might I would like to share a..."

Patrick,
I would like to know more about your regimen and diet.
I was diagnosed this last month with carcinoid tumor at junction of small/large intestine. With biopsy I got 2nd opinion. PET done showing multiple lesions in liver.
I saw Oncologist a week ago, he staged at 4 and said Grade 1. He said tumor has metastasized to liver. I began Somatuline Depot injection that day.
My goal is to do all I can to stave off symptoms with diet and exercise and Hopeful said I should contact you for your comment.
I should mention I am 5’7” @ 145# 77 yrs. and am type 2 diabetic (well controlled).
I have looked at the Carcinoid Syndrome Diet and incorporated some foods mentioned in the hope of alleviating foods that would irritate.
Will you share your thoughts with me?
Best to you…