← Return to Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

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@terrirussell

I totally agree. I have it and insisted on a biopsy to corroborate for myself and a new Dr that I had cells consistent w someone w EDS. ! It was good enough for the doctors and insurance. Prior to that which is more recent, I could show orthopedist early on all of the physical tests in which I could tick off every one of the symptoms. I always start with touching floor flat handed w knees locked. My sister can even touch her nose with her tongue!

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Replies to "I totally agree. I have it and insisted on a biopsy to corroborate for myself and..."

Thank you so much for sharing this 🌼 May I ask what type of biopsy? It’s really interesting.

In my case so far is HSD because they didn’t saw something’s that could have made me fall under hEDS instead. My genetic test was from Invitae “Connective Tissue Disorders” panel cheek swab. The issue with this is that it’s missing two related genes. One of them TNBX that my independent lab find something I can’t understand tbh 🤷🏻‍♀️