← Return to Ehlers Danlos Syndrome (EDS) & HSD, calling all types!
DiscussionEhlers Danlos Syndrome (EDS) & HSD, calling all types!
Bones, Joints & Muscles | Last Active: Feb 8 8:59pm | Replies (65)Comment receiving replies
Replies to "I totally agree. I have it and insisted on a biopsy to corroborate for myself and..."
Thank you so much for sharing this 🌼 May I ask what type of biopsy? It’s really interesting.
In my case so far is HSD because they didn’t saw something’s that could have made me fall under hEDS instead. My genetic test was from Invitae “Connective Tissue Disorders” panel cheek swab. The issue with this is that it’s missing two related genes. One of them TNBX that my independent lab find something I can’t understand tbh 🤷🏻♀️