← Return to Almost dead from Long COVID! HELP!!!!!

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@gillysmom

Most people who have benefitted from treatment, whic I have as well from support groups and mynreading, followed protocols from their private pay functional docs. I have benefitted from fellow members of my support groups. One long hauler resource is Facebook Long-Haulers. Also check the possbilty of hidden Epstein-Barr virus (EBV) resurgence, and fnd good info in Stuff that Works and Facebook Neuro V Long-Haulers. Until docs and big pharma can catch up with the need, you are challenged to become your own advocate and researcher. Don't give up. There is good free info available. All the best to you for finding ways to help yourself and heal. Blessings.

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Replies to "Most people who have benefitted from treatment, whic I have as well from support groups and..."

I totally agree the doctors are not doing their research
Facebook has done more for me than any doctor has
They are worthless
The Facebook group administration has at least got us disabity reform and changed refusal of us getting in long haul groups with no positive test or positive antibody test
Get with it docs and Mayo