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Neuroendocrine Tumors (NETs) | Last Active: 16 hours ago | Replies (411)

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@smt

I had surgery (Whipple) to remove a functioning NET from the head of my Pancreas after living with it for 10 years. For me my quality of life greatly improved after surgery but mine was functioning and made me very sick. Three surgeons recommended leaving it in (watching it). At the time of my surgery I had two new leasions on my liver and had them removed as well. Three years after the surgery I have new spot on my liver. I wish I had the surgery when I was first diagnosed but decisions are easier to make looking backwards and I had a lot of improvement after the surgery.

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Replies to "I had surgery (Whipple) to remove a functioning NET from the head of my Pancreas after..."


Thank you for responding . You give me hope as I navigate this journey. Hope you continue to do well.

Thankyou for your update. I hope to go 10 years without surgery because my NET which is on the head of the Pancreas is non functional at this time.