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Uterine Fibroids: What's your experience?
Women's Health | Last Active: Nov 15, 2022 | Replies (49)Comment receiving replies
@lidiana, I moved your post to this existing discussion about fibroids and women's health:
- Uterine Fibroids: What's your experience? https://connect.mayoclinic.org/discussion/uterine-fibroids/
I did this so you can read the previous posts and connect with other members like @2929 @mcmurf2 @zakcat @mepowers @marjou @luckielucci who may have experience to share about first symptoms and what diagnostic testing they had.
Lidiana, have you been diagnosed with fibroids or is it unclear still? Was you doctor concerned about the results of the PET scan or order more testing?
Replies to "@lidiana, I moved your post to this existing discussion about fibroids and women's health: - Uterine..."
@colleenyoung thanks for asking 🌼 In March 2022 I got a regular PET scan that showed that I had uptake suspected fibroid (also all my bowels “physiological activity”) but the local OBGYN said that that’s not the best way to identify or diagnose fibroids so ordered a transvaginal US and pelvic area US that wasn’t caught. Them fast forward all this symptoms and new ovarian and MRE identified it and it’s evident. I haven’t compared the images to see how different the fibroid has grown or if it’s correlated to the area of my bladder hypervascular spot. I’m scheduled with a OBGYN surgeon specialized in endometriosis laparoscopic surgery. This was suggested by the urologist just by looking inside my bladder and finding the hypervascular spot at the back of my bladder. I’m really concerned because I’m having the collection of this symptoms that I’m don’t know are all from endometriosis or fibroids:
✅petichiae (the new spot appeared on my nose)
✅severe bone pain
✅ leukoplakia on gums
✅bloating
✅nausea
✅severe abdominal pain low ✅urine or retention
✅constipation or extreme ✅diarrhea
✅breathing difficulties ✅heart rate abnormalities ✅movement impairment ✅syncope
✅hemorrhagic gastritis
✅cyst on brain, neura foramina, ovaries, liver, kidney ✅patchy lesions on bone scans
✅constant high D DIMERs
✅high tumor markers CA 19.9
✅Chromogranin A
✅High cardiolipin
✅positive and negative ANA ✅ speech impairment
✅new massive headaches
✅ neuropathy pain and itching
Hopefully we are getting closer but I did wanted to be treated at Mayo for this with a OBGYN but I understand there’s a process to be referred to Mayo. I just feel that surgically big approaches I would honestly prefer having it at Mayo. It’s just really hard because I’m at Kissimmee. 🙏🏻I’m just trusting the plan for now.
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@lidiana My symptoms started with heavy bleeding for most of the month for years then pain. First Ob/Gyn suggested D &C then laparoscopy which showed some of the fibroids. He suggested only a hysterectomy but that was not what I deemed as the only option so I changed Ob/Gyn who gave me other options but told me that the pain would eventually get bad enough that I would drop to my knees which meant surgery. That’s what happened, had surgery to remove only the fibroids (my choice) and recovery went well. That’s my experience.