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Stage 4, High-Grade Neuroendocrine carcinoma
Neuroendocrine Tumors (NETs) | Last Active: Mar 6, 2023 | Replies (24)Comment receiving replies
@kim2022, you are in the right place to talk about stage 4, high grade neuroendocrine carcinoma with no active tumors and no known origin. It must be unsettling to hear that, not only do you have cancer, but its origin is unknown.
May I ask why you had a hysterectomy? Was this before your diagnosis and unrelated to cancer?
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@colleenyoung I had the hysterectomy in 2014 because they found 3 fibroid tumors that were extremely large. Since I wasn't going to have more children, and had a history of fibroid tumors, doctor thought it best just to have hysterectomy. Currently all of my cancer treatment has been placed on hold because insurance just told us that none of the scans, tests, or chemo is medically necessary. Doctor is furious so RMCC is going to appeal. Now we are in wait to see what happens next mode.