1. < Chronic Pain

5yrs of terrible pain

Posted by sprinrosa64 @sprinrosa64, Nov 5, 2022

After TKR I have been stuck with terrible pain with no answer , I am always searching for an answer and was wondering if anyone has had experience with Calmare or Scrambler therapy

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
Rachel, Volunteer Mentor | @rwinney | Nov 14, 2022
In reply to @notmoff "@rwinney - My pain started when I was T-boned in a VW bug in the mid..." + (show)
@notmoff

@rwinney - My pain started when I was T-boned in a VW bug in the mid 70's. There was no real help from Kaiser other than a pair of crutches. Friends shopped and laundered for me until I could take a step without screaming from the pain and falling. With peripheral neuropathy and spinal compression fractures for the past 10 years, the pain has worsened but now I know to take about 2250 mg/day of Acetaminophen so I can provide very basic care for myself. I've also learned to avoid nsaids and opioids that cause me more pain. Distraction by watching Chef SJ interviews on you tube helps.

Wish I had more words of wisdom other than to just be attentive on these groups, not give up and have my only fear of death be fear of dying in even more pain.

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So true about the possibility of increased pain from certain medications. I experienced opiod-induced hyperalgesia which was a big indicating factor to wean off of them.

Here's more on hyperalgesia:

- https://my.clevelandclinic.org/health/symptoms/23550-hyperalgesia

I take acetaminophen, as sparingly as possible, and use self-help tools like mindfulness, meditation, breathing techniques and imagery. Things like distraction and joy help too. Do you have a hobby that keeps your mind distracted?

REPLY
notmoff | @notmoff | Nov 14, 2022
In reply to @rwinney "It sounds like a miracle that you survived. Wow! I can only imagine you've had many..." + (show)
@rwinney

It sounds like a miracle that you survived. Wow! I can only imagine you've had many years of challenges. Your positive, never give up attitude is one if your best medicines.

My mom was t-boned while driving her motorcycle in 1978. She was 28 years old then and I've witnessed her perseverance along the way. Not an easy life but she sure has made the most and done the best she can.

You both are inspirational humans! 👏🏼

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Unfortunate that your mom's condition may have made mothering a challenge, which you might have experienced as a child. At least there was no one dependent on me.
Perseverance is the word! Any inspiration to others was unintentional on my part. How to make the best of our one life is the goal.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Nov 15, 2022
In reply to @notmoff "Unfortunate that your mom's condition may have made mothering a challenge, which you might have experienced..." + (show)
@notmoff

Unfortunate that your mom's condition may have made mothering a challenge, which you might have experienced as a child. At least there was no one dependent on me.
Perseverance is the word! Any inspiration to others was unintentional on my part. How to make the best of our one life is the goal.

Jump to this post

Good for you! Positivity is key.
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