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Tymlos side effects I've encountered

Osteoporosis & Bone Health | Last Active: Dec 3 9:58am | Replies (289)

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@txmom

I have been on Tymlos for 18 months. Staying with 6 clicks have been the best for me with no side effects. I have tried ramping it up but have bad nausea & some headache with more. Only 3 more months to go. I have a lot of jaw pain and am so nervous about deciding on something after Tymlos. Does anyone have any suggestions?

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Replies to "I have been on Tymlos for 18 months. Staying with 6 clicks have been the best..."

@txmom, good evening. I just wanted to pass along a hint about your next step after Tymlos.
With Tymlos you had an injection every day. That means you were not loading up your body once every six months or so. I also had no problems with Tymlos for two years.

However, when I tried Prolia, the six-month dosage was just too heavy for me. I had joint and jaw pain for the first 3 of the 6 months. So my endocrinologist took me off Prolia and put me on a weekly tablet of Alendronate. No pain, no side effects. An easy solution so far.
Worth looking into????

May you have comfort and ease.
Chris

@txmom
It seems to me that most doctors recommend Reclast after Tymlos or Forteo. I will be ending my time on Tymlos in January and I think that's what I will get on, but I am nervous about it.

@artscaping Alendronate is basically Fosomax, right? I probably cannot take an oral medication due to having Barrett's Esophagus.

I have found Tymlos to be odd in that some side effects seem to be sporadic. I have temporarily stopped it for a few days and that has seemed to act like a reset. Since initially I didn't have any side effects when some occurred my first thought was not Tymlos but I'm pretty sure now that it is the culprit.
JK

@txmom I am dealing with what to do next as well. My docs want to do a test dose of 1mg (full dose 5mg) of Reclast to "lock in" my gains, then I would do 2-3mg after 3 months. I have read a half dose is as effective and my endo wants to do that after the test dose if I tolerate that. I would be able to take a med break after a year or two, I think, because Reclast stays in the system.

My nephrologist is concerned about effect on my kidneys so I have one specialty conflicting with another. I have asked if I could go on Evenity after Tymlos and despite the fact that many on this forum are doing that, both my main endo and second opinion say no due to "lack of date."

I just cancelled my 7/10 infusion of Reclast and will continue Tymlos for a few months while I try to improve my kidney function. I will have done a full two year by October. I want to do a P1NP soon to see if it is still working.