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5yrs of terrible pain

Chronic Pain | Last Active: Nov 15, 2022 | Replies (23)

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@notmoff

@rwinney - My pain started when I was T-boned in a VW bug in the mid 70's. There was no real help from Kaiser other than a pair of crutches. Friends shopped and laundered for me until I could take a step without screaming from the pain and falling. With peripheral neuropathy and spinal compression fractures for the past 10 years, the pain has worsened but now I know to take about 2250 mg/day of Acetaminophen so I can provide very basic care for myself. I've also learned to avoid nsaids and opioids that cause me more pain. Distraction by watching Chef SJ interviews on you tube helps.

Wish I had more words of wisdom other than to just be attentive on these groups, not give up and have my only fear of death be fear of dying in even more pain.

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Replies to "@rwinney - My pain started when I was T-boned in a VW bug in the mid..."

So true about the possibility of increased pain from certain medications. I experienced opiod-induced hyperalgesia which was a big indicating factor to wean off of them.

Here's more on hyperalgesia:

- https://my.clevelandclinic.org/health/symptoms/23550-hyperalgesia

I take acetaminophen, as sparingly as possible, and use self-help tools like mindfulness, meditation, breathing techniques and imagery. Things like distraction and joy help too. Do you have a hobby that keeps your mind distracted?