Hello @lakesofdelray, welcome.

Isn't it awful, the burning pain? I'm sorry you're struggling . As you'll find, self-management can play a pretty big role in addition to medication and treatments. Calming the CNS was a whole new task I needed to learn as complimentary therapy.

I tried Botox, nerve blocks and ablations to no avail. What types of treatment are you currently receiving? Are they helping?