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← Return to 5yrs of terrible pain
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Chronic Pain | Last Active: Nov 15, 2022 | Replies (23)
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@notmoff I'm sure glad you found us here on Connect! It is a wonderful forum to receive support, encouragement, and share valuable information and experience.
You mention having a long way to go in your search for pain relief. How long has your pain journey been? What steps have you taken thus far? I get the feeling you may be trying to move past the exclusive hope that medications and procedures are enough to do the job. Am I correct? Please fill me in.
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@rwinney - My pain started when I was T-boned in a VW bug in the mid 70's. There was no real help from Kaiser other than a pair of crutches. Friends shopped and laundered for me until I could take a step without screaming from the pain and falling. With peripheral neuropathy and spinal compression fractures for the past 10 years, the pain has worsened but now I know to take about 2250 mg/day of Acetaminophen so I can provide very basic care for myself. I've also learned to avoid nsaids and opioids that cause me more pain. Distraction by watching Chef SJ interviews on you tube helps.
Wish I had more words of wisdom other than to just be attentive on these groups, not give up and have my only fear of death be fear of dying in even more pain.