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kristiengelman0912 (@kristiengelman0912)

Newly diagnosed mixed IDC and ILC

Breast Cancer | Last Active: Nov 17, 2022 | Replies (9)

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Sorry to hear of your devastating news. I too was blindsided when I received my diagnosis in Jan 22 of double foci BC two months after a “ normal” mammo ( I persisted with a symptom until an MRI was performed). I was devastated.

Hang in there. Take a deep breath and educate yourself about BC and treatments. Your path will become clear as more testing is done. It’s a steep learning curve and decisions will need to come fast at times.

Enlist the help of a trusted friend, if possible, to be another set of ears at appointments. As you gain information make a list… a long list… of questions. Self advocacy will come in handy.

A lot is going on in the research concerning BC. There are more options now. Once you have more definitive information a treatment plan ( or plans) will evolve.

I too was ER/PR+, HER2- I had a unilateral mastectomy and I am taking hormone (aka anti hormone) therapy for 5-10 years.

Caution: because you are ER + you will be offered anti hormone therapy … a daily pill of an Aromatase Inhibitor (AI) … there are 3 kinds all of which do pretty much the same thing … cut estradiol from converting to estrogen aka killing off estrogen production. If you are pre menopausal ( age wise you likely are) then ovarian suppression will also be needed.

I have learned that once you take AI you are no longer eligible to get an ONCOTYPE ( determines if chemo will be beneficial in your case) for any BC tissue that may have been left behind. They will be able to type the tissue already removed and you should request that testing … it takes a few weeks to get results.

Wishing you the best possible news going forward. Hang in there! Hugs.

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Replies to "Sorry to hear of your devastating news. I too was blindsided when I received my diagnosis..."

Thank you for the oncotype suggestion- I don’t have this written anywhere so I will follow up. I he my Mirena IUD removed in Thursday and there was discussion about hormone therapy and possible ovary treatment of some type. Hoping for more news and plans this week or next.