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← Return to COVID vaccines and neuropathy
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So is ptsd, carpal tunnel, fibromyalgia, depression, anxiety, and other things I have, if disabling, and they were even before this new autoimmune and neurological stuff. My disability determination caseworker told me he doesn't believe in anything that can't be definitively diagnosed, especially things like fibromyalgia that are only diagnosed by ruling other things out.
So I guess he's waiting for a definitive diagnosis of something. Guess he doesn't believe in ptsd or anything either, idk.
I just subjected myself to a horrible, barbaric nerve conduction test and emg for that very reason. Hopefully I will get some kind of "real" diagnosis from that that will appease him. The results were ready that same day, but I have to wait til Tuesday and pay yet another copay to get them. I've known for years I have severe carpal tunnel and so have my drs but I've never had that horrible test. I'm pretty positive I have polyneuropathy as well. If it's not that I probably have MS which means more and different tests.
I'm just so infuriated. I am so bad off I could probably be in a nursing home and every dr has witnessed it. There's no excuse for all of this torture and waiting. Especially when the vaccine caused all of this new stuff and I have supporting evidence of that. The least thing the government could do after encouraging and coercing people with false information to get it is fast track their disability. They are the ones who made it so no one has to be responsible so they should accept some responsibility or at least do the minimum amount possible and approve my case instead of causing me more suffering and trauma with all of the waiting while I am barely surviving and about to be homeless because of it. Completely ridiculous.
No, I don't have an atty yet. I tried but they said I have to wait until I'm denied.
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@heatherupchurch
I never had any symptoms of carpal tunnel and 2 months after being fully vaccinated I woke one morning with severe carpal tunnel in both hands! I went to ER and they diagnosed me with carpal tunnel, saw specialist next day and he confirmed carpal tunnel by tapping my wrist and since my hand flung back, he was sure it was carpal tunnel. Mind you, I’ve never had any symptoms prior. He offered steroids or surgery, luckily I opted for steroids. A week later the real crazy stuff started! Neuropathy to the point I couldn’t walk, severe nerve pain, muscle spasms, etc… I googled carpal tunnel and nothing mentioned the numbness in legs, so I called the carpal tunnel specialist and told him what was happening and he then said “oh this isn’t carpal tunnel” I was dumbfounded and sent to a spine specialist next. Had a MRI and everything was normal, nothing explained the numbness and weakness in my legs. I was then referred to a nerve specialist who ruled out carpal tunnel. What??? I don’t have it at all?? Why did my hands swell so badly overnight??? Terrified and confused about what was happening!
The three specialists got together and reviewed my case, they told me they thought I was having a reaction to the vaccination. They csaid get to SLC now! We don’t know what to do for you.
I Immediately went to ER two hours away and was then told “this can’t be from the vaccination”, completely dismissed and left list 😞. The ER did refer me to a neurologist since I had severe neuropathy. Waited months to get in to see him. Terrified and depressed and scared and lost! All alone and unsure of what was happening! I was finally able to see the neurologist and I was testing for MS. I finally got brain scan and MS was ruled out! Oh happy day, but what is happening? Referred to a muscular neurologist who also couldn’t find any reasons for my sudden onset symptoms!
I have been sick for over a year now, and seen many neurologist and rheumatologist. Selling my home after depleting my fathers bank account, moving to California with my little sister for help. I’ve always owned my own home since 19 and to be so helpless and vulnerable, depending on others for most everything has been so completely debilitating and depressing!
In the end, I have been diagnosed with “Post Vaccination Paralysis” and “Fibromyalgia Onset by the vaccination” I too have been denied for SS and now have a lawyer.
I completely understand the frustration and many other scary stuff happening to you!!
I hope my story has helped you and please visit this website: https://react19.org/
I have found help, resources, and just knowing I’m not alone!
Wishing you and all of us the best and hopefully we get some help soon!
REAL NOT RARE!