I am so sorry for your pain. We DISH patients all have many similarities and some have more and may be at different stages of their disease. I wish I could help you with your search. I have a couple specialists that know some info about DISH . The spine specialist seem to know the most. He actually said that looking at my scans and x-rays he expected somebody in person that would look a lot worse. I said don’t let the outside fool you. Just because I can still do some things doesn’t mean I’m not in pain doing it. We need to keep educating people including physicians about this disease. I pray you find somebody to help you.