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Understanding GFR and kidney disease: What's normal?
Kidney & Bladder | Last Active: Jun 27, 2023 | Replies (44)Comment receiving replies
I understand your troubles in finding results of CKD. Many doctors do not tell the patient at all. For 18 years 3 doctors knew I had stage 3 CKD, did not bother to tell me; I found I am in stage 3a since I moved to NC. I sent for my records & paid for 18 years of testing and every page said CKD stage 3. When I called my last Dr. in Ohio he said he did not know about it. Which means one thing, he ordered tests and did not bother to read them. All 3 doctors,
I mean; the other 2 would not talk to me. I am glad your persistence gave you results and help. Good luck, I am 95 as of Oct. 27 this year. And by the way: no pain killers work for me any more, so I am glad I have not much pain.
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I hope our readers will take note of your post regarding medical staff, including doctors, who do not read patient's lab results or discuss them with the patient. It is a sad situation, but I believe we, the patients, need to be better advocates for ourselves. We may be seen as trouble-makers for demanding better communication between us and our doctors, but we will have the information we need to make good decisions. In my opinion, if I cannot establish a good line of communication with my doctor, I find a different doctor.
Sarah.