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Mayo Clinic Pain Rehab Center (PRC) - What’s Your Experience?
Chronic Pain | Last Active: Nov 19 1:12pm | Replies (116)Comment receiving replies
Well in the end the Dr .came up with a nice report and summary plus an opinion stating that I was a good candidate for the PRC. I’m pretty sure the next Dr will say the same thing . So I’m pretty sure I’ll be going.
Still wondering how much room for behavioural modification there is with the particular characteristics and intensity of my pain . It’s very daunting to have to trust a system that says it can help me change my functionality significantly, without any new treatment , some medication weaning and some group therapy going over pain concepts that I have already explored in depth over 12 years. I lie here suffering intently ,despite applying mindfulness , an attitude of gratitude and positivity and having paced myself to best of ability today. I feel like ,perhaps , I am too far gone down the rabbit hole to be able to expect much change . Somewhere on the bell curve of chronic pain patients there must be outliers that are outside the therapeutic window . I feel like I may well be one of them . The PRC must have data on this which I guess it doesn’t publish. All I can do ,as you suggested , is trust and believe in the system , drink the Kool-aid , if you will and immerse myself in the schedule , somehow pushing past the inevitable huge flare up that getting there and adapting is going to induce . As I said , daunting .
Replies to "Well in the end the Dr .came up with a nice report and summary plus an..."
Sorry you have been suffering.
A handful of people who have suffered a myriad of unclear illnesses have told me of their success with the Gupta Program. It is an online. limbic retraining program that take 12 weeks of 40 minutes a day practice. I have not done it yet but plan to start in mid December.
I believe there is another program as well.
Best of luck to you.
I pray and hope that the program can help you, Alan. I can only imagine how daunting it feels when you've been dealing with your pain for so long and tried so many things. The fact that you're still open and willing to try this program says a lot about you. There's so many that wouldn't even try. There's a grit and a determination to not give up even though you're struggling. Depending on whether you're accepted into the program and how soon you would go, I may be seeing you there, depending on which location you've applied to. I found out I was accepted into the program last week and will start on November 29th at the Rochester, MN location (this Texan has gotta get ready for some major cold!). I'm excited but it's also scary at the same time. I'm trying really hard to not let my fears get worked up about it. It's a gamble. We don't know what will happen. But I'm praying and believing good things to come from it for both of us. The place where I will be staying in Rochester is run by a gentleman who has been through the PRC program himself. He said the program saved his life. That was encouraging for me to hear. Keep me posted on if you get in and when you'll be going!
Best,
Michelle
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Very daunting. I agree. And where ARE the outliers in these studies? Sounds like a case of "toxic positivity", where all we have to do is " think happy thoughts", decrease our meds, and our pain will magically go away. Soooo much more research is needed in this area...sigh....