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← Return to COVID vaccines and neuropathy
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Hello @betl, Welcome to Connect. I also have been diagnosed with idiopathic small fiber peripheral neuropathy but I don't have any associated pain, just some numbness and a little tingling. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/
I was diagnosed by a neurologist at Mayo Clinic Rochester after having the condition for 20+ years not having a diagnosis, just numbness symptoms. I don't think it makes much difference as far as treatments go. They can only treat the symptoms as there really is no cure for neuropathy. There is a good list of available treatments on the Foundation for Peripheral Neuropathy website here that might be helpful - https://www.foundationforpn.org/treatments/
Has your primary care doctor shared what they think could be causing the symptoms if it's not neuropathy?
Replies to "Hello @betl, Welcome to Connect. I also have been diagnosed with idiopathic small fiber peripheral neuropathy..."
PS: Thanks for the referral to the Foundation. The info is very helpful.
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John,
Thank you for your reply. You are fortunate that you’ve not had pain with the neuropathy. Mine started with tingling of the toes but soon graduated to leg and muscle pain. Leg pain was the reason the EMG testing was done. The final diagnosis was ideopathic peripheral neuropathy. I’ve had a complete physical hoping to locate the cause. My primary care doctor’s belief is that the neuropathy and leg/muscle problem are two different issues, although I realize that neuropathy can also affect the legs, as well as hands, etc. The doctor does not know more which is why I have now been referred to two different specialists. Thanks again for your response.
Betty
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