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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@betl

This is the first time I’ve posted and have read comments from many with PN. I’ve been diagnosed with idiopathic peripheral neuropathy. The diagnosis was based on results of EMG. I’ve had epidural steroid injections twice to no avail. It started with tingling of feet and has moved to lower legs effecting muscles. I am in pain most of the time and find that I can no longer exercise or take long walks as before. I tried Gabapentin but did not like the side effects so use Aleve sparingly. I have always been quite active and am trying to determine the cause of the neuropathy. My primary care doctor is of the opinion (after review of a complete blood panel and urinalysis and his own testing) that the cause of my leg problems may not be neuropathy connected. He is sending me to see an orthopedic. I have a future appointment with a neurologist also. As for Covid, I had it early in 2021 and had Mono-Clonal antibody treatment. The neurology surfaced in early 2022 and has been present throughout 2022 during which time my condition has worsened. Has anyone been to the Mayo Clinic in Rochester? I am in NC but was a patient at Mayo Clinic in Jacksonville for several years. If no resolution to the cause and/or treatment is determined, I am wondering which Mayo Clinic location would be a better choice. I have read that the Mayo in Rochester specializes in Neurology, although the Jacksonville location would be closer. Any ideas on treatment options that alleviate symptoms would be helpful.

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Replies to "This is the first time I’ve posted and have read comments from many with PN. I’ve..."

Hello @betl, Welcome to Connect. I also have been diagnosed with idiopathic small fiber peripheral neuropathy but I don't have any associated pain, just some numbness and a little tingling. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/

I was diagnosed by a neurologist at Mayo Clinic Rochester after having the condition for 20+ years not having a diagnosis, just numbness symptoms. I don't think it makes much difference as far as treatments go. They can only treat the symptoms as there really is no cure for neuropathy. There is a good list of available treatments on the Foundation for Peripheral Neuropathy website here that might be helpful - https://www.foundationforpn.org/treatments/

Has your primary care doctor shared what they think could be causing the symptoms if it's not neuropathy?