← Return to COVID vaccines and neuropathy
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Replies to "This is the first time I’ve posted and have read comments from many with PN. I’ve..."
Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.
Hello @betl, Welcome to Connect. I also have been diagnosed with idiopathic small fiber peripheral neuropathy but I don't have any associated pain, just some numbness and a little tingling. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/
I was diagnosed by a neurologist at Mayo Clinic Rochester after having the condition for 20+ years not having a diagnosis, just numbness symptoms. I don't think it makes much difference as far as treatments go. They can only treat the symptoms as there really is no cure for neuropathy. There is a good list of available treatments on the Foundation for Peripheral Neuropathy website here that might be helpful - https://www.foundationforpn.org/treatments/
Has your primary care doctor shared what they think could be causing the symptoms if it's not neuropathy?