Replies to My inflammatory markers all went away within the first MONTH of my diagnosis and Prednisone treatment….

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Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)

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@keelin

My inflammatory markers all went away within the first MONTH of my diagnosis and Prednisone treatment.
However, the PAIN, fatigue, loss of appetite, and general depression have only worsened. (Prednisone does NOT take away my pain at all !?)
Even with my inflammation markers all being 'normal' for over 6 months now, I still have PMR. Go figure. I continue to believe that PMR is a weakly diagnosed (and treated) problem. PMR=Prednisone=more PMR= more Prednisone. I'm told this may last what's left of my lifetime.

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Replies to "My inflammatory markers all went away within the first MONTH of my diagnosis and Prednisone treatment...."

John, Volunteer Mentor | @johnbishop | Nov 11, 2022

@keelin - If the prednisone is not providing pain relief, then maybe you don't really have PMR but a condition that mimics PMR? I know you've mentioned you've seen 2 rheumatologists in other posts earlier but if it were me I would try to ask a bunch of "why is the pain not being addressed by the treatment" questions and maybe seek help at a teaching hospital or major health facility like Mayo Clinic. I'm sure there is a treatment out there somewhere that can help.

-- Diseases that mimic polymyalgia rheumatica (PMR):
https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica
-- Clinical manifestations and diagnosis of polymyalgia rheumatica:
https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-polymyalgia-rheumatica/print

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