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Tested postive for Lynch Syndrome: Anyone have this?

Cancer | Last Active: Nov 26 8:15pm | Replies (46)

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@stlsampsondev

I have Lynch Syndrome which is a lot of screenings that insurance does cover. You might consider having your doctor submit paperwork to your insurance before your screenings and verify they will cover it. Do you follow at mayo? My doctors at mayo are very familiar with Lynch.

I am was thrown into early menopause because of Lynch which was rough. I had my uterus and ovaries out. They found premalignant cells in my uterus. It is hard because not everyone understands the emotional impact of Lynch unless they have it.

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Replies to "I have Lynch Syndrome which is a lot of screenings that insurance does cover. You might..."

I do follow at mayo. What kind of paperwork did your doctor submit to insurance? It does toy with the emotions! I am 32 yrs old and toying with the idea of having a hysterectomy just because my aunt had stage 4 Ovarian Cancer at age 38. It puts a lot of stress on the emotions to even think of having a hysterectomy and not being able to have anymore kids!