← Return to Trigeminal neuritis/neuralgia treatment: What works for you?

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@Restless67

Hi Cagon,
I feel sooo bad for you because I was once in that particular hell! I couldn't take the oral meds so I had 2 mac degeneration surgeries where they put teflon on the blood vessels so that the nerve could be protected. Some say it works. I had 2 that didn't. I had a gamma knife procedure that didn't work either. So after 5 years of horrible stabbing pain I finally asked for a Rhritzomy....where they finally cut the nerve so that they didn't touch anymore aganist the blood vessel. It is the only procedure that finally gets rid of TN.!! Your mouth is numb and there maybae some complication, but it beats the suicidal thoughts you feel when you get searing thunder pain stabbing thru' your face. Talk to your doctor about that option.

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Replies to "Hi Cagon, I feel sooo bad for you because I was once in that particular hell!..."

Thanks my plan is radio frequency lesioning I still need to speak with the neurosurgeon. it seems less invasive than the others. I hate to hear the different procedure you went thru and they didn't work. my face swells and gets really hot before the pain hits.. It started above my eye and forehead and has made ts way down to the cheek and jaw over the last few months. My lip and inside mouth kicks in and there is no way to brush teeth or eat. Can't touch side of my face or drink shearing pain. Sorry don't mean to be long winded no one understands this I think they think I am just crazy.

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