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Trigeminal neuritis/neuralgia treatment: What works for you?
Brain & Nervous System | Last Active: Oct 22 3:04pm | Replies (66)Comment receiving replies
<p>I just joined the discussions here. I had the disease TN. on the right side of my face. The Neuosugeons from UC Davis in Sacramento Ca, (after many surgeries) finally gave me a brain Ritzotomy that cuts 2 out of 3 branches in my face. It ended the pain. I now have numbness and Anastesia Delrosa or burning face syndrome as a complication.. My question is can the TN come back on the other side of the face? I have pain when I chew on the left side.</p>
Replies to "I just joined the discussions here. I had the disease TN. on the right side of..."
Hi Colleen<br />
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Thanks for your reply. I haven't seen a Neurologist since my Ritzotomy surgery 5 yrs ago. That is where they have to 'cut' 2 out of the 3 nerve branches. The blood vessels hit that nerve thus causing the TN pain. I had tried EVERYTHING. (including the Gamma knife) to no avail. All the surgeries I had.... didn't work!<br />
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Finally they did the Ritizomy. It is hard to explain the Anathesia Delrosa. If you look it up, it will help you understand somewhat. (Try looking up 'burning mouth syndrome also.)<br />
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Do you have AD? Not everyone has it. Did you get nerves cut?<br />
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I have chronic back pain also, so thru' a managed pain clinic, I use Oxycodone for my pain. I also use a Lidocaine 2% external gel for the mouth pain when it burns too badly. I have good days and bad days. The cold weather makes a difference. (I live in Calif, so I don't what my excuse is.)<br />
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I do not recommend opiates however. A mouth guard is what I am going to look into for the AD or burn mouth pain so I quit chomping on my inner cheek. I don't know what I will do if I haveTN coming back on my left side now. I take Lamictal pills instead of Garabenten. Lamictal calms the cheek pain. It doesn't make me too sick like the rest of the pills<br />
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Best of everything!<br />
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Lana<br />
Hi Lana,
I should've introduced myself. I'm the Community Director here at Connect. I don't have TN or AD. Knowing how challenging it can be to manage anesthesia dolorosa, I was wondering how you deal with it. Thank you for the details. It sounds like your managing it in multiple ways. Thank goodness you live in warm climate so you don't have the extra burden of cold winters making it worse.
Is the pain on your left side persisting? Do you plan to see a neurologist?
Connect
Hi @Restless67,
Welcome to connect.
In this post @ruthanne speaks of getting gamma knife treatment for her tribiminal neuralgia https://connect.mayoclinic.org/discussion/seeking-advice/?pg=1#post-26435 Hopefully she'll join this conversation thread.
I can imagine that pain on your left side would lead you to worry about TN coming to that side of your face. Have you spoken to a neurologist about the new pain? How are you managing the anesthesia dolorosa?