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DiscussionRedundant/Tortuous Colon & Severe Constipation
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Replies to "Has anyone with severe motility issues had a colectomy? If yes, could you please share your..."
I have since June 2020 and canceled surgery twice,I’m terrified and 68 so is it worth it. All this because we can’t poop. I just can’t wrap my head around this. I wonder if you went through with it and how old you are if you don’t mind me asking.
Thanks…Joanne
Hi, I’m in a bad place right now, I’m on day 12 and no movement. I’ve been this way since June 2020 and yes, I’ve tried everything. I was scheduled twice for the surgery and canceled both. I don’t want to have a terrible life after like I have now.
I have to admit because of seeing it done so often I’m terrified to wake up with tube up my nose into my stomach. They said it goes in while sleeping but I’ve seen it need to be replaced numerous times. This sounds so terrible but if I had cancer I’d do it but I just can’t wrap my head around doing this because my colon won’t work. I also have gastroparesis. Last month I went 8 days in a row, not a lot, but on my own. It had been weeks before that experience. So, it can work. I eat very little, drink tons of water and the list goes on. It simply doesn’t help. Let me know if you did the surgery and your experience. I’m not near Mayo I live outside Boston.
Thanks and all the best..Joanne