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Prolapse bowel surgery: What was your recovery like?
Digestive Health | Last Active: Jun 24, 2023 | Replies (73)Comment receiving replies
Dear Terri - I I'm so happy to see your post, and was surprised by the fact that you have EDS, a connective tissue disorder, and still benefited from the surgery with no complications. I have EDS/HSD and always been told that people with connective tissue disorders are much more likely to suffer a complications from a pelvic prolapse correction. Can you tell us how you were counseled about that, and whether precautions were taken because of your condition?
I'm so thrilled for you that you've had nothing but success! I've been suffering from a large rectocele for several years but have been advised away from surgery because of EDS/HSD. I also have severe dietary constraints and crippling intestinal gas, but the prolapse is the hardest to manage. Sometimes I can't imagine how I manage this when I'm older (it takes a lot of physical strength to splint), but I'm afraid of making things worse. I'd love to hear more about your story. Cheers, - E
Replies to "Dear Terri - I I'm so happy to see your post, and was surprised by the..."
Hi Erin…! I am so sorry it’s January and just answering you! My bad!….as to Surgery, I’ve had over 40 in my life and glad for every one of them. Sometimes it’s the doctors who don’t know enough to “risk ‘ surgery. Not informed or comfortable. I am very pro active and go and get each one that I want. Including that one!….go get yourself fixed by a doctor who gets us and who is not afraid . I got that run around from a young doctor once and just went to a more experienced one. There is appropriate risk for each of us that renders us a quality of life that we are happy about and each one of us need to decide. I do my research on doctors and then add in my instincts when I meet them . I am interviewing them and if they are not informed on EDS then I’m out of there. When I had lenses put in my eyes, they brought in two of the best in Fl. I never had any problems so that will help the next person and now I see 20/20. I looked down at my elderly mothers 10 toes that were all hammered and thought….ahhh no thanks! As he had terrible balance because of them. Looked at my own and went in and had all 10 done in 4 surgeries as they had already started to curl. As I got knees and hips replaced I was so glad later for my perfect balance. Project ahead and if you see a need , don’t wait until you are in pain or dislocation to get the correct surgeries done. There is only more of the same ahead for us. Also, I can’t say enough about Oxalate overload eating and what a huge problem that is for we who suffer inflammation! Stay away from high oxalate foods, high histamine foods and high lectin foods, as well as gluten. We are overly sensitive to all of that and swell easily. And yes!! There is a lot of food still to choose from . You will be rid of the gas of all the things you can’t digest easily. Dr Becky Campbell on line will help you sort out all the lists of food that I’m mentioning, and Dr. Beth O’Hara……and many others who suffer the same but forged a better way. Campbell has her own vitamins that I used to get well called Optimal Reset. there are so many vitamins that she organized them into a valuable thing for others. I also have Mast Cell Activation Syndrome and very possibly you do too. I’d check that out. 40% of EDS folks have some form of it. That could be a huge culprit for your agony. I would love to hear from you and that you are finding a way!….God Bless……Terri
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I have HSD and receding prolapse hemorrhoids. My recent genetic test said I have TNXB can this make me more prone to prolapse? Is this hEDS? I’m so concerned also my uterus moves like crazy and it’s always I’m other positions and I have hiatal hernia and mitral prolapse 😅 still dunno how so many organs if it’s HSD. But definitely I’m not looking forward on needed surgery I’m trying to get help from my team 🙏🏻