← Return to Do I really have PMR?

Discussion

Do I really have PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)

Comment receiving replies
@keelin

PMR has no exact tests to diagnose it. Doctors go by symptoms and usually inflammatory markers are raised. But even that doesn’t prove you have PMR.
Read up on the prednisone. It doesn’t do much of anything for my pain, but it sure causes side effects! Doctors just love putting patients on prednisone and walking away. Seems easy. Meanwhile, what happening to your body? Only you can care.
Be careful.
And remember- Doctors “practice,” they don’t KNOW much, especially about PMR!

Jump to this post


Replies to "PMR has no exact tests to diagnose it. Doctors go by symptoms and usually inflammatory markers..."

I may have been misdiagnosed with PMR in March of 2021 and took Prednisone for over a year and a half! Then I went to another rheumatologist who thinks that I never had PMR because I only had pain while laying down and I had no inflammatory markers. Now it seems like my pain could have been cervical radiculopathy all this time!

IMO, best thing to do is take the Pred, get rid of the pain and then slowly get off the Pred whilst checking regularly for the usual side effects. If you're pain free and off the Pred does it really matter what the problem was? if doctors can't really identify PMR and its cause then they should stop experimenting with us when we're in pain. Pred fixes PMR, get on with it.