Increasingly Difficult to Accept Peripheral Neuropathy

Posted by fisbo @fisbo, Oct 10, 2022

I am finding it increasingly difficult to accept peripheral neuropathy it's all very well people coming up with suggestions but carrying them out is quite another. I am no longer who I was and think I am boring and miserable because I am now. Pain takes over and I have become fearful nervous prone to panic attacks which are awful because I start to shake with worrying about the future. I have other worries anyway but if this damned PN would go away it would help.

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pamelaz | @pamelaz | Nov 9, 2022

Does anyone have any suggestions for really bad neuropathy?

John, Volunteer Mentor | @johnbishop | Nov 9, 2022

In reply to @pamelaz "Does anyone have any suggestions for really bad neuropathy?" + (show)

@pamelaz have you tried any of the treatments listed on the Foundation for Peripheral Neuropathy's website?

-- Complementary Therapies: https://www.foundationforpn.org/living-well/complementary-therapies/
-- Peripheral Neuropathy Treatments: https://www.foundationforpn.org/treatments/

pamelaz | @pamelaz | Nov 9, 2022

In reply to @johnbishop "@pamelaz have you tried any of the treatments listed on the Foundation for Peripheral Neuropathy's website?..." + (show)

I’ve tried several. But my neuropathy is so painful I can hardly stand it.

ced | @ced | Nov 9, 2022

R lipoic acid for neuropathy.

Google the above and research it. I found it VERY good for neuropathy. Really brilliant. It's the more bio available version of Alpha Lipoic Acid (freely available in health shops) However you might want to take a thymine supplement with it as Lipoic acid can deplete that vitamin in your system. Also it may lower your blood sugar a bit. Anyway I find it great I have to say. God bless.

bustrbrwn22 | @bustrbrwn22 | Nov 9, 2022

Has anyone found particular brands of R-Lipoic Acid better than others?

Amanda Roe | @amandajro | Nov 9, 2022

In reply to @pamelaz "Gabapentin has started making my legs go out of control and my face horrible faces. I..." + (show)

Hello @pamelaz. I can't help but feel you are in sheer desperation with your symptoms. The pain from neuropathy is real and so many members like you know that all too well. I have a family member who is going through this now and my eyes have been opened wide. What helps you the most when you feel your most desperate?

SteveSH | @steveny9 | Nov 10, 2022

In reply to @medman18 "I just feel so bad for all these people, I too have Neuropathy but sorry to..." + (show)

Try to find ways to reduce the progression if this is just the beginning.

Mine was caused by statins. If I had know over time this might occur I would have been more proactive in reducing my mg and reviewing the most effective statins that did not cause neuropathy.

Good Luck.........

medman18 | @medman18 | Nov 10, 2022

In reply to @steveny9 "Try to find ways to reduce the progression if this is just the beginning. Mine was..." + (show)

Thanks for your reply. I had no idea Statins causes Neuropathy. Good to know and I sure hope you get some relief from what ever you do.
Jack

pamelaz | @pamelaz | Nov 10, 2022

In reply to @amandajro "Hello @pamelaz. I can't help but feel you are in sheer desperation with your symptoms. The..." + (show)

Trying to walk but it burns so bad.

fala | @fala | Nov 11, 2022

In reply to @julkun "QUTENZA® (capsaicin) 8% topical system is indicated in adults for the treatment of neuropathic pain associated..." + (show)

Hi, I thought I would share my one time experience with putting Capsaicin on my feet. Not fair, I should give a little history. I have used this product on my back successfully, so why not? First, I should let it be know, I have had PN for many years. It has progressed enormously over the years. I went from an Outside sales job (with great pay), to an inside Marketing job with much less money, but walking only to and from my car. Foot pain, always the culprit! Over 20 years later, it is still a trial and error process. I am taking CBD daily, which allows me to function. Even though the pain is reduced, it is still ever present. I decided to try Capsaicin on my cold feeling feet. OMG, I had to run & sit on the side of the tub, run the water, get soap and a brush to take that extremely painful cream off ASAP!!! Very Bad experience. Makes no sense to me, just thought I let you know, it's not a solution for feet for everyone.