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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
My husband was just told he has "Distal Sensory Axonal Polyneuropathy", by his fourth neurologist this year. I'm not able to get a clear sense of what it is and how it will play out. Does anyone have info on it? A little back round, my husband is 72 and has been drinking a lot most of his life, otherwise he is fine. He has now stopped drinking after he had fallen several times starting in March. The first doctor said he had Parkinsons. Second doctor said he had "Chronic Inflammatory Demyelinating Polyneuropathy" or C.I.D.P. Third neurologist said he didn't know what my husband had other than poor nerve conduction. When I asked doctor number 4 if he had alcoholic myopathy, because he had a lot of those symptoms, the doctor said "No". I very confused.Thanks in advance for your help.
Replies to "My husband was just told he has "Distal Sensory Axonal Polyneuropathy", by his fourth neurologist this..."
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Neuropathy is a very confusing disease with hundreds of variations, effects, symptoms, treatment and not a whole lot known. Distal, I believe, is most common in conjunction with diabetes mellitus. Breaking it down, its affects both sides of the body (poly), distant from the center of the body (distal), impacting the ability for nerves to sense touch (sensory), and going first for the actual nerves a long way from the brain (axonal). CIPD, I'm told, is a) chronic, involving inflammation and deterioration of the protective sheath around the nerve (myelin). A battery of tests can help form an accurate diagnosis and treatment plan, perhaps from Doctors Two and Four. My suggestion would be to connect with them, bring all your questions, and clear the air of confusion. Good luck for getting clarity and a plan.