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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hello Chris, thanks for the greeting! My symptoms began years ago, with pain in the side of one foot; I thought i had bad shoes! threw them away, and surprise, didn't help! Then progressed to tremendous pressure in R foot, like it was going to explode when walked on. Then a couple of years ago, suddenly took off like wildfire- up my ankle, up my leg, to my waist- numbness, electric tingling, burning, feels like feet made of WOOD! At same time, feels like rocks under my socks. So after a year of testing, finally definitively diagnosed by a specialized skin punch. I've been on LDN for about a year, and still having awful insomnia and disturbing dreams. Up to 3.5 mg now. The whothing is frightening. Idiopathic. Who's the idiot that can't figure this disease out? ?
Replies to "Hello Chris, thanks for the greeting! My symptoms began years ago, with pain in the side..."
Good evening, and thank you so much for adding an important chapter to your story. I also appreciated the Skin Biopsy report. And I do see that Colleen has explained about protecting your identity.
That report is 95% longer than what I received. It looks like they have been able to add more to the test results. Mine was never shown to me. I just saw the diagnosis on my portal.
You certainly had a progressive unveiling of your idiopathic SFN. There is another category mentioned and it is "traumatic". If you have had multiple injuries and/or surgeries then the cause may be listed as "Traumatic". I have had 14 orthopedic surgeries including 3 spinal. And then there were quite a number of accidents including 2 rear-end collisions which can be damaging. Add to that falling down mountains and off of horses and I understand my SFN causes.
You have been suffering for at least two years. My symptoms have been very similar. I have had the fire in my abdomen, the 5 a.m. muscle alarm in my leg, and then the burning. Is LDN helping relieve your discomfort? Do you use any topicals?
You mentioned sleeping and dreaming issues. There are some "sleep helpers" like Nortriptyline. Have you tried any of those? My experience with dreams was frightening because they related directly to trauma in my life. They did taper off after a couple of years. Just make sure you work with your clinician so there won't be a conflict with LDN.
When is your next visit with your doctor?
May you be safe, free, and protected from inner and outer harm.
Chris
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Hi @peggioh, idiopathic neuropathy is frustrating to say the least. Please note that I removed the PDF of your test results because it contain personal identifying information. Mayo Clinic Connect is a public forum. Before posting lab or clinical testing results, we recommend removing any identifying information to protect your privacy and security.