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Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)
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Hi Englebarb, Itta, John Bishop.
I had PMR 10 years ago, successfully treated with Prednisolone. Started experiencing exacay the same pattern of pains in March 2022 and was convinced it was a recurrence. Neither ESR or CRP were raised. I had to prompt my GP to test consecutively for all potential conditions with a similar pattern of symptoms, before he sent me to a Rheumatologist. It took 10 months for my them to take it seriously. Rheum. told me I was a very unusual lady, that it was very rare to have it twice 10 years apart. 20mg of Prednisolone took the pain away in 36 hours.
Thank everyone for sharing their experiences!
Replies to "Hi Englebarb, Itta, John Bishop. I had PMR 10 years ago, successfully treated with Prednisolone. Started..."
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Horrible! What's with these doctors that don't LISTEN to their patients, who often KNOW their bodies and what's going on!?!?
From what I've read/heard, it is not unusual at all to have a reoccurrence, regardless of the time frame.
I'm left wondering how long you will have to be on the (strong) prednisolone? It's such a damaging drug. (doesn't take away my pain, which renders it useless to me)